interview with Parkinson’s sufferers spouse.

When 1st diagnosed with PD they were offered to attend 4 weeks of workshops, 1 day a week. A PD nurse took the evening, education about progression, medication, encouragement on how important it is to seek a second opinion if seen fit, importance of timing for drugs and side effects. A guest speaker encouraged awareness of the volume of voice, one man recalled  having trouble to speak up but being able to sing. Other issues that can be addressed are being aware of your small steps, there were individual workshops and there were other people that had been in the PD boat a bit longer that wanted to share advice on what to expect, some advice that was given was about the grief and loss 1st experienced that simmers before it returns when things again deteriorate. A councillor was made available and these sessions are paid for by the government.



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