carers time-out

http://www.carersair.net.nz/sites/default/files/documents/Weekly_Respite_Planner_Carers_NZ.pdf

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interview with Parkinson’s sufferers spouse.

When 1st diagnosed with PD they were offered to attend 4 weeks of workshops, 1 day a week. A PD nurse took the evening, education about progression, medication, encouragement on how important it is to seek a second opinion if seen fit, importance of timing for drugs and side effects. A guest speaker encouraged awareness of the volume of voice, one man recalled  having trouble to speak up but being able to sing. Other issues that can be addressed are being aware of your small steps, there were individual workshops and there were other people that had been in the PD boat a bit longer that wanted to share advice on what to expect, some advice that was given was about the grief and loss 1st experienced that simmers before it returns when things again deteriorate. A councillor was made available and these sessions are paid for by the government.

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TED talk

  • Future of personal Health and being pro active.
  • Networking
  • customisation
  • collaboration

I’m interested in where a medical has room to move. I’m also interested in how this could work in collaboration with other sectors and what a larger profile simplified would look like. Many people especially with Parkinsons have very different symptoms, it doesn’t affect 2 people the same.

What would it mean if carers and people with PD didn’t have to go to the doctors as often?

If people were interested in using a specific diet or exercise could this all be part of a greater profile.

‘When Eric Dishman was in college, doctors told him he had 2 to 3 years to live. That was a long time ago. Now, Dishman puts his experience and his expertise as a medical tech specialist together to suggest a bold idea for reinventing health care — by putting the patient at the center of a treatment team.’

Eric Dishman does health care research for Intel — studying how new technology can solve big problems in the system for the sick, the aging and, well, all of us.